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Connecting: Acromegaly
Support Groups and Resources

On this page, you will find links to sites that provide:

These resources refer to websites maintained by third parties over whom Novartis Pharmaceuticals Corporation has no control. As such, Novartis Pharmaceuticals Corporation makes no representation as to the accuracy, completeness, adequacy, or any other aspects of the information contained on such websites.


Acromegaly Information

Your health care provider is your first source of information because he or she understands your individual medical needs. Still, the Internet can be a good source of information about acromegaly, and it provides a way for patients and families to "talk" with one another, and share feelings and resources.



American Association of Clinical Endocrinologists

For endocrinologists; recommended if you are already very familiar with acromegaly and endocrinology. Links to treatment guidelines, publications, and meeting calendars.

www.aace.com



American Sleep Apnea Association

A helpful source of information for people affected by sleep apnea, including pages on being evaluated, personal stories, and support group information.

www.sleepapnea.org



The Endocrine Society

For endocrinologists; recommended if you are already very familiar with acromegaly and endocrinology. Links to symposia discussions, professional education, and press releases on the latest research findings.

www.endo-society.org



Neuroendocrine Clinical Center & Pituitary Tumor Center of Massachusetts General Hospital

Affiliated with Harvard Medical School, this site provides physician-level information on acromegaly diagnosis, treatment, and research.

pituitary.mgh.harvard.edu/



The Pituitary Network Association (PNA)

The Pituitary Network Association (PNA) is an international nonprofit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them.

www.pituitary.org



Society for Endocrinology

For endocrinologists: Recommended if you are already very familiar with acromegaly and endocrinology.

www.endocrinology.org



Acromegaly Support Groups

Joining an acromegaly support group can help you deal with acromegaly and interact with people who are going through similar experiences. Support groups share the latest treatment information, personal stories, and ways to get support for overcoming a disease. If you are interested in joining an acromegaly support group, a list of groups and their websites is provided above.