On this page, you will find links to sites that provide:
These resources refer to websites maintained by third parties over whom Novartis Pharmaceuticals Corporation has no control. As such, Novartis Pharmaceuticals Corporation makes no representation as to the accuracy, completeness, adequacy, or any other aspects of the information contained on such websites.
Your healthcare provider is your first source of information because he or she understands your individual medical needs. Still, the Internet can be a good source of information about acromegaly, and it provides a way for patients and families to "talk" with one another, and share feelings and resources.
AcromegalySupport.com is a nonprofit organization devoted to helping acromegaly patients, family, and friends cope with acromegaly in their lives. The goal of this organization is to provide emotional support by creating an online community of acromegaly patients, families, and friends, who can share their experiences, problems, and solutions while dealing with acromegaly.
American Association of Clinical Endocrinologists
For endocrinologists; recommended if you are already very familiar with acromegaly and endocrinology. Links to treatment guidelines, publications, and meeting calendars.
American Sleep Apnea Association
A helpful source of information for people affected by sleep apnea, including pages on being evaluated, personal stories, and support group information.
The Endocrine Society
For endocrinologists; recommended if you are already very familiar with acromegaly and endocrinology. Links to symposia discussions, professional education, and press releases on the latest research findings.
Neuroendocrine Clinical Center & Pituitary Tumor Center of Massachusetts General Hospital
Affiliated with Harvard Medical School, this site provides physician-level information on acromegaly diagnosis, treatment, and research.
The Pituitary Network Association (PNA)
The Pituitary Network Association (PNA) is an international nonprofit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and healthcare providers who treat them.
Society for Endocrinology
For endocrinologists: Recommended if you are already very familiar with acromegaly and endocrinology.
Acromegaly Support Groups
Joining an acromegaly support group can help you deal with acromegaly and interact with people who are going through similar experiences. Support groups share the latest treatment information, personal stories, and ways to get support for overcoming a disease. If you are interested in joining an acromegaly support group, a list of groups and their websites is provided above.